During my sister’s traditional Lao wedding and her actual wedding, I was in so much pain. I have no idea how I got through those two days, but I did. On Monday, I decided to go into Kaiser to finally get this flare under control.
While in the Emergency Room, I went through numerous blood tests, urine tests, and even a CT scan. All the tests came back to show that I had inflammation in my intestines/colon. So they decided to admit me into the hospital.
Since Monday, I’ve been here in Kaiser getting steroids via IV, my blood drawn at least once a day, and meds every 8 hours. Unfortunately, this treatment wasn’t doing much, so yesterday I underwent a flex sigmoidoscopy. We were able to see how severely inflamed my colon was. It was literally covered in ulcers.
The gastroenterologist decided that at this point we are going to start a stronger biologic treatment (called Infliximab) which is given through an IV infusion. Basically, I would be hooked up to this IV for 2 hours. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease. I would have to come to Kaiser as an outpatient and do these infusions every several weeks. Since these infusions suppressed my immune system I have to be more careful of who is around me so I don’t get sick.
It really sucks that my regular medication couldn’t get me out of this flare. And I am scared that this is how I have to live the rest of my life. So now I feel like I need to really change how I am living my life and what I eat. Expect these regular updates I guess!